If you are a cancer survivor with a history of pelvic radiation therapy, please consider joining the Radiation Cystitis Patient Registry.

Additional resources are needed to advance RC understanding – including the development of new and larger RC patient registries. The RC Foundation highlights the Radiation Cystitis Patient Registry, which aggregates data on the health status of individuals with RC.

The goal is to create a resource to help doctors better recognize severe complications that arise long after pelvic radiation treatments. Researchers also use the Patient Registry to study RC treatments and outcomes and to design RC clinical trials.

The potential uses of this registry about RC (and cancer survivorship post-radiotherapy) include: improving the scientific understanding of RC, discovering trends and common needs of registry participants, describing the aggregate personal characteristics of patients within the registry, documenting registry patient medical histories, and contacting registry participants to inform them of new studies.

This registry has been created and developed within the published guidance of the National Institute of Health Rare Diseases Registry Program (RaDaR) and is not affiliated with the RC foundation. As a reminder, please review the registry instructions and disclosures before deciding to participate.

The form takes less than 5 minutes to complete.